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Miscellaneous Medical and Health Resources

PFA Tips Articles – Healthcare

“Today I am going to have my blood drawn” story by HANS (Help Autism Now Society)

Blood Draw: What to Expect – video social story by the Autism Research Institute

“Today I am going to see the doctor” story by HANS (Help Autism Now Society)

My Medical Appointment – form (to be filled out prior to a medical appointment) that helps the individual manage his health questions and instructions during the appointment.

My Health Passport  – form (to be filled out prior to a medical appointment/hospital visit) that allows the individual to enter information such as medical, preferred communication styles/methods etc. to be shared with medical personnel.

Getting a Flu Shot social story by The Boggs Center on Developmental Disabilities

Social Story about the Flu by Autism Speaks

The Guide to Getting and Using Your Health Records

20 Tips for Planning a Doctor’s Visit for your Child with Special Needs

Vision Exams for Individuals with Autism
A video and accompanying social narrative from Autism Speaks Autism Treatment Network to help prepare individuals with autism for visits to the eye doctor.

Easing Anxiety During Medical Procedures: Positioning for Comfort  – a video guide

Easing Medical Anxiety Through Play and Priming* – a video guide

HealthMatters Program – engages people with IDD and their supports to have access to research, education and training, service learning, and evaluation tools to improve their health where they live, work, learn, and play.

Find a resource to help with your child’s health insurance coverage from The Catalyst Center

The free app Capzule helps you collect all your personal and family medical history into one place, along with medication information, medication reminders, input tracking information on things like blood pressure and blood glucose, a daily health diary, a journal to track how you’re feeling, and a list of questions to ask your doctor during your next visit.

Communication Rights Toolkit  – This toolkit: (1) explains your communication rights; (2) provides tips on advocating for them, and (3) has an accommodation request form you can bring to the hospital.

Advance Directive Toolkit from Kennedy Krieger Institute – Adults may use an advance directive to designate who has the power to make decisions on their behalf, what decisions others may make for them, and the scope of those decisions.


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