Family Voices of Pennsylvania

Family Voices of Pennsylvania (FV PA) shares resources with families of children with special health care needs through a variety of activities including one-to-one contacts with family members, focus groups, conferences and listservs. FV PA works with other organizations to ensure that parents have information on family and youth leadership, legislative advocacy, special education, Medical Home, mental health, cultural competence, foster care services, transition to adult care and vocational rehabilitation. FV PA continues to provide the family perspective while serving as a parent representative on the PA Department of Public Health Special Needs Task Force, a group that counts among its membership representatives of the state Medicaid agency, SCHIP program, Title V agency, private hospitals, medical practices and insurers, advocacy organizations, schools and other stakeholders. As a member of this task force, FV PA has led workshops and training sessions for social workers, program executives, medical practitioners and parents.